Miedos, esperanzas y reivindicaciones de padres de niños con TEA

  1. Lourdes Moro Gutiérrez 1
  2. Cristina Jenaro Río 1
  3. María Solano Sánchez 1
  1. 1 Universidad de Salamanca
    info

    Universidad de Salamanca

    Salamanca, España

    ROR https://ror.org/02f40zc51

Journal:
Siglo Cero: Revista Española sobre Discapacidad Intelectual

ISSN: 2530-0350

Year of publication: 2015

Volume: 46

Issue: 4

Pages: 7-24

Type: Article

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More publications in: Siglo Cero: Revista Española sobre Discapacidad Intelectual

Abstract

The term "autism spectrum disorders" (ASD) designates a set of varying conditions that have in common the presence of difficulties in social co1nmunication and restricted and repetitive behaviors. Without denying the relevance of research seeking to understand the etiology of this disorder, the in1plementation of measures to improve the conditions of people with ASD and their families needs to address this disorder from a psycho-social and cultural perspective. In this article this condition is addressed from three perspectives: disease, illness and sickness. Specifically, from a group of thirteen families of children with ASD, we aimed to: (1) Identify the process of communicating the diagnosis and providing information ( disease). (2) Assess the perceived relationship with professionals of these families (illness). (3) Understand the perceived supports and barriers by parents in addressing the ASD (sickness). By using open and closed questions this study reveals: (1) The need to improve the communication of the diagnosis and the professionals' training and sensitization. (2) The importance of empowering parents as focus for care and offer support and health and education services in settings as normalized as possible. (3) Increase the support received in the various life domains and continued efforts to promote the social acceptance of this group.

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Data source: Dialnet