Una mirada emic a las actitudespercepción de las personas con síndrome de down

  1. López Lucas, Jesús
  2. Jenaro, Cristina
  3. Flores, Noelia
  4. Beltrán, Marina
  5. Toma, Raluca
Journal:
International Journal of Developmental and Educational Psychology: INFAD. Revista de Psicología

ISSN: 0214-9877

Year of publication: 2014

Issue Title: LA PSICOLOGÍA DE HOY

Volume: 4

Issue: 1

Pages: 215-226

Type: Article

DOI: 10.17060/IJODAEP.2014.N1.V4.605 DIALNET GOOGLE SCHOLAR lock_openOpen access editor

More publications in: International Journal of Developmental and Educational Psychology: INFAD. Revista de Psicología

Abstract

Starting from the premise that attitudes influence behavior of those who expressed such attitudes, as well as from the attitudinal referents, in this study we present the results obtained after assessing the perceptions of 15 individuals with Down syndrome by means of in depth interviews. The objective was to determine the perceptions of people with Down syndrome toward themselves and their disability. We expected that respondents perceived both positive and negative attitudes. The interviews were transcribed and the results of the coding of the 147 selected textual fragments revealed the existence two major factors. On the one hand, those that denote unfavorable attitudes and relate to shame, rejection, understanding the Down syndrome as a disease, overprotection or consider that they are all friendly and loving. It also includes comments to some remaining challenges and its association with the need to eliminate stereotypes and overprotection. Concerning positive attitudes, they relate to perceived improvements in the recognition of their rights, inclusion in different life, social and employment domains. There are also improvements regarding equal treatment, acceptance and respect. Finally, guidelines for improving the inclusion of this group are suggested.

Bibliographic References

  • Chou, C. C., Lee, T. Y., & Shih, F. J. (2001). The decision-making process of pregnant women with positive reaction to maternal serum screening for Down’s syndrome when facing amniocentesis. Nursing Research, 9(1), 15-27.
  • Mactavish, J. B., & Schleien, S. J. (2004). Re-injecting spontaneity and balance in family life: Parents’ perspective on recreation in families that include children with developmental disability. Journal of Intellectual Disability Research, 48(2), 123-141. doi:10.1111/j.1365-2788.2004.00502.x
  • Nunes, M. D. R., & Dupas, G. (2011). Independence of children with down syndrome: The experiences of families. Revista Latino-Americana de Enfermagem, 19(4), 985-993. doi:10.1590/S0104-11692011000400018
  • Nunes, M. D., Dupas, G., & Nascimento, L. C. (2011). [Going through cloudy periods: the experience of families of children with Down Syndrome]. Revista brasileira de enfermagem, 64(2), 227-233.
  • Soãres de Lima, S. B., Luzia Leite, J., Erdmann, A. L., Giacomelli Prochnow, A., Andrade Conceição Stipp, M., & Real Lima García, V. R. (2010). La teoría fundamentada en datos: un camino a la investigación en enfermería. Index de Enfermería, 19(1), 55-59. doi:10.4321/S1132-12962010000100012
  • Choque Aspiazu, G. (s. f.). Etnofotografía del textil andino con teoría fundamentada. Recuperado a partir de http://www.espe.edu.ec/portal/files/sitio_congreso_2011/papers/C1.pdf
  • Vega, V. (2011). Apoyos, servicios y calidad de vida en centros residenciales chilenos para personas con discapacidad intellectual. Salamanca: Ediciones Universidad de Salamanca.
  • Sánchez, M. C., Revuelta, F. I. y Martín, J. F. (2004). Herramientas de análisis cualitativo para la investigación en contextos multiculturales. Ponencia presentada en el XIII Congreso Nacional y II Iberoamericano de Pedagogía. Recuperado de http://web.usal.es/~fird/docs/Nacional_Pedagogia-Valencia_2004.pdf
  • Muñoz, J. (2005) Análisis cualitativo de datos textuales con Atlas.ti 5. Manual del programa. Barcelona, Universidad Autónoma de Barcelona.
  • Valles, M. S. (2001). Ventajas y desafíos del uso de programas informáticos (eg ATLAS. ti y MAXqda) en el análisis cualitativo. Una reflexión metodológica desde la grounded theory y el contexto de la investigación social española. Ponencia en el Seminario sobre Investigación Avanzada Cualitativa Asistida por Ordenador, Granada. Recuperado a partir de http://centrodeestudiosandaluces.es/biblio/imagendoc/00000001_00000500/00000125/00000125_090h0101.PDF
Data source: Dialnet