Intervención temprana en menores con trastorno del espectro autista (TEA)el papel de las familias

  1. Álvaro Bejarano Martín 1
  1. 1 Universidad de Salamanca
    info

    Universidad de Salamanca

    Salamanca, España

    ROR https://ror.org/02f40zc51

Revue:
Actas de coordinación sociosanitaria

ISSN: 2529-8240

Année de publication: 2019

Titre de la publication: Atención temprana

Número: 24

Pages: 127-144

Type: Article

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D'autres publications dans: Actas de coordinación sociosanitaria

Résumé

Currently, there is a growing demand for the inclusion of parents and family members in early intervention programs for the development of communication and social skills, to reduce core symptoms of children with autism spectrum disorder (ASD). Even now, no systematic study has been carried out on the role played by parents within programs and / or strategies designed to improve specific difficulties. Knowing the role that families should have in the programs can increase the effect, reduce costs of services, as well as stress and family burden. The main objective of this review is to compare the role of parents in different intervention programs, considering their effectiveness and results in improving skills in children with ASD. The electronic and manual searches identified a total of 465 references, of which 13 were included in the analysis. The results suggest that interventions that include parents have positive effects in terms of skill acquisition. The effects are greater in programs where parents actively participate, cooperate with professionals and receive specific training. It is also important to highlight the adaptation of the program to the characteristics of each child and their families to achieve substantial improvements in the learning of skills.

Références bibliographiques

  • ADDM, 2018, Prevalence of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2014. MMWR Surveill Summ, 2018. 67(6): p. 1-23.
  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5®). American Psychiatric Pub. Biobehavioral Reviews, 33, 1204–1214.
  • Bradshaw, J., Steiner, A. M., Gengoux, G., & Koegel, L. K. (2015). Feasibility and Effectiveness of Very Early Intervention for Infants At-Risk for Autism Spectrum Disorder: A Systematic Review. Journal of Autism and Developmental Disorders, 45(3), 778–794. https://doi.org/10.1007/s10803-014-2235-2
  • Burke, M. M., & Goldman, S. E. (2015). Identifying the associated factors of mediation and due process in families of students with autism spectrum disorder. Journal of Autism and Developmental Disorders, 45(5), 1345–1353. https://doi.org/10.1007/s10803-014-2294-4
  • Casagrande, K. A., & Ingersoll, B. R. (2017). Service Delivery Outcomes in ASD: Role of Parent Education, Empowerment, and Professional Partnerships. Journal of Child and Family Studies, 26(9), 2386–2395. https://doi.org/10.1007/s10826-017-0759-8
  • Crais, E. R., & Watson, L. R. (2014). Challenges and opportunities in early identification and intervention for children at-risk for autism spectrum disorders. International Journal of Speech-Language Pathology, 16(1), 23–29.
  • Dababnah, S., & Parish, S. L. (2016). A Comprehensive Literature Review of Randomized Controlled Trials for Parents of Young Children with Autism Spectrum Disorder. Journal of Evidence-Informed Social Work, 13(3), 277–292. https://doi.org/10.1080/23761407.2015.1052909
  • Dawson, G. (2008). Early behavioral intervention, brain plasticity, and the prevention of autism spectrum disorder. Development and Psychopathology, 20(03). https://doi.org/10.1017/ S0954579408000370
  • Dawson, G., Rogers, S., Munson, J., Smith, M., Winter, J., Greenson, J., … Varley, J. (2010). Randomized, Controlled Trial of an Intervention for Toddlers With Autism: The Early Start Denver Model. Pediatrics, 125(1), e17–e23. https://doi.org/10.1542/peds.2009-0958
  • Debodinance, E., Maljaars, J., Noens, I., & Van den Noortgate, W. (2017). Interventions for toddlers with autism spectrum disorder: A meta-analysis of single-subject experimental studies. Research in Autism Spectrum Disorders, 36 (Supplement C), 79–92. https://doi.org/10.1016/j.rasd.2017.01.010
  • DePape, A.-M., & Lindsay, S. (2015). Parents’ Experiences of Caring for a Child With Autism Spectrum Disorder. Qualitative Health Research, 25(4), 569–583. https://doi. org/10.1177/1049732314552455
  • Estes, A., Munson, J., Rogers, S. J., Greenson, J., Winter, J., & Dawson, G. (2015). LongTerm Outcomes of Early Intervention in 6-Year-Old Children With Autism Spectrum Disorder. Journal of the American Academy of Child and Adolescent Psychiatry, 54(7), 580–587. https://doi.org/10.1016/j.jaac.2015.04.005
  • Hock, R. M., Timm, T. M., & Ramisch, J. L. (2012). Parenting children with autism spectrum disorders: a crucible for couple relationships. Child & Family Social Work, 17(4), 406–415. https://doi.org/10.1111/j.1365-2206.2011.00794.x
  • Howlin, P., Magiati, I., & Charman, T. (2009). Systematic review of early intensive behavioral interventions for children with autism. American Journal on Intellectual and Developmental Disabilities, 114(1), 23–41. https://doi.org/10.1352/2009.114:23;nd41
  • Iemmi, V. (n.d.). The autism dividend. Reaping the rewards of better investment (2017). Retrieved from http://www.academia.edu/30967428/The_autism_dividend._Reaping_the_ rewards_of_better_investment_2017_
  • Keen, D., Couzens, D., Muspratt, S., & Rodger, S. (2010). The effects of a parent-focused intervention for children with a recent diagnosis of autism spectrum disorder on parenting stress and competence. Research in Autism Spectrum Disorders, 4(2), 229–241. https://doi.org/10.1016/j.rasd.2009.09.009
  • Kuo, D. Z., Bird, T. M., & Tilford, J. M. (2011). Associations of family-centered care with health care outcomes for children with special health care needs. Maternal and Child Health Journal, 15(6), 794–805. https://doi.org/10.1007/s10995-010-0648-x
  • Leadbitter, K., Aldred, C., McConachie, H., Le Couteur, A., Kapadia, D., Charman, T., … PACT Consortium. (2017). The Autism Family Experience Questionnaire (AFEQ): An Ecologically-Valid, Parent-Nominated Measure of Family Experience, Quality of Life and Prioritised Outcomes for Early Intervention. Journal of Autism and Developmental Disorders. https://doi.org/10.1007/s10803-017-3350-7
  • Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., & Fryer, G. E. (2008). Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children’s Health. Journal of Developmental and Behavioral Pediatrics: JDBP, 29(3), 152–160. https://doi.org/10.1097/DBP.0b013e318165c7a0
  • Mazurek, M. O., Handen, B. L., Wodka, E. L., Nowinski, L., Butter, E., & Engelhardt, C. R. (2014). Age at First Autism Spectrum Disorder Diagnosis: The Role of Birth Cohort, Demographic Factors, and Clinical Features. Journal of Developmental & Behavioral Pediatrics, 35(9), 561–569. https://doi.org/10.1097/DBP.0000000000000097
  • McConachie, H., & Diggle, T. (2007). Parent implemented early intervention for young children with autism spectrum disorder: a systematic review. Journal of Evaluation in Clinical Practice, 13(1), 120–129. https://doi.org/10.1111/j.1365-2753.2006.00674.x
  • McConachie, H., Parr, J. R., Glod, M., Hanratty, J., Livingstone, N., Oono, I. P., … Williams, K. (2015). Systematic review of tools to measure outcomes for young children with autism spectrum disorder. Health Technology Assessment (Winchester, England), 19(41), 1–506. https://doi.org/10.3310/hta19410
  • Moh, T. A., & Magiati, I. (2012). Factors associated with parental stress and satisfaction during the process of diagnosis of children with Autism Spectrum Disorders. Research in Autism Spectrum Disorders, 6(1), 293–303. https://doi.org/10.1016/j.rasd.2011.05.011
  • Odom, S. L., Boyd, B. A., Hall, L. J., & Hume, K. (2010). Evaluation of Comprehensive Treatment Models for Individuals with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders, 40(4), 425–436. https://doi.org/10.1007/s10803-009-0825-1
  • Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the United Kingdom. Autism, 18(7), 756–770. https://doi.org/10.1177/1362361314529627
  • Pickles, A., Couteur, A. L., Leadbitter, K., Salomone, E., Cole-Fletcher, R., Tobin, H., … Green, J. (2016). Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial. The Lancet, 388(10059), 2501–2509. https://doi.org/10.1016/S0140-6736(16)31229-6
  • Reichow, B. (2012). Overview of Meta-Analyses on Early Intensive Behavioral Intervention for Young Children with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders, 42(4), 512–520. https://doi.org/10.1007/s10803-011-1218-9
  • Rogers, S. J., & Vismara, L. A. (2008). Evidence-based comprehensive treatments for early autism. Journal of Clinical Child and Adolescent Psychology: The Official Journal for the Society of Clinical Child and Adolescent Psychology, American Psychological Association, Division 53, 37(1), 8–38. https://doi.org/10.1080/15374410701817808
  • Ryberg, K. H. (2015). Evidence for the Implementation of the Early Start Denver Model for Young Children With Autism Spectrum Disorder. Journal of the American Psychiatric Nurses Association, 21(5), 327–337. https://doi.org/10.1177/1078390315608165
  • Sheldrick, R.C. and Carter, A.S., 2018, State-Level Trends in the Prevalence of Autism Spectrum Disorder (ASD) from 2000 to 2012: A Reanalysis of Findings from the Autism and Developmental Disabilities Network. J Autism Dev Disord, 2018. 48(9): p. 3086-3092.
  • Steiner, A. M., Koegel, L. K., Koegel, R. L., & Ence, W. A. (2012). Issues and Theoretical Constructs Regarding Parent Education for Autism Spectrum Disorders. Journal of Autism and Developmental Disorders, 42(6). https://doi.org/10.1007/s10803-011-1194-0
  • Summers, J. A., Hoffman, L., Marquis, J., Turnbull, A., Poston, D., & Nelson, L. L. (2005). Measuring the Quality of Family—Professional Partnerships in Special Education Services. Exceptional Children, 72(1), 65–81. https://doi.org/10.1177/001440290507200104
  • Virués-Ortega, J. (2010). Applied behavior analytic intervention for autism in early childhood: meta-analysis, meta-regression and dose-response meta-analysis of multiple outcomes. Clinical Psychology Review, 30(4), 387–399. https://doi.org/10.1016/j.cpr.2010.01.008
  • Waddington, H., Meer, L. van der, & Sigafoos, J. (2016). Effectiveness of the Early Start Denver Model: a Systematic Review. Review Journal of Autism and Developmental Disorders, 3(2), 93–106. https://doi.org/10.1007/s40489-015-0068-3
  • Warren, Z., McPheeters, M. L., Sathe, N., Foss-Feig, J. H., Glasser, A., & Veenstra-VanderWeele, J. (2011). A Systematic Review of Early Intensive Intervention for Autism Spectrum Disorders. Pediatrics, peds.2011-0426. https://doi.org/10.1542/peds.2011-0426
  • Zwaigenbaum, L., Bauman, M. L., Choueiri, R., Kasari, C., Carter, A., Granpeesheh, D., … Natowicz, M. R. (2015). Early Intervention for Children With Autism Spectrum Disorder Under 3 Years of Age: Recommendations for Practice and Research. Pediatrics, 136 Suppl 1, S60-81. https://doi.org/10.1542/peds.2014-3667E
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