Calidad de vida individualavances en su conceptualización y retos emergentes en el ámbito de la discapacidad
- Gómez Sánchez, Laura Elisabet 1
- Verdugo Alonso, Miguel Ángel
- Arias Martínez, Benito
-
1
Universidad de Oviedo
info
ISSN: 1132-9483
Year of publication: 2010
Volume: 18
Issue: 3
Pages: 453-472
Type: Article
More publications in: Psicología conductual = behavioral psychology: Revista internacional de psicología clínica y de la salud
Bibliographic References
- Aguado, A. L. y Alcedo, M. A. (2005). Una visión psicosocial del envejecimiento de las personas con lesión medular. Intervención Psicosocial, 14, 51-63.
- Aguado, A. L., Alcedo, M. A., Rueda, M. B., González, M. y Real, S. (2008). La evaluación e intervención de mayores dependientes. En R. Fernández-Ballesteros (dir.), Psicología de la vejez: una psicogerontología aplicada (pp. 215-247). Madrid: Pirámide.
- Aguado, A. L., González, I., Alcedo, M. A. y Arias, B. (2003). Calidad de vida y lesión medular. En M. A. Verdugo y B. Jordán de Urríes (dirs.), Investigación, innovación y cambio (pp. 624-664). Salamanca: Amarú.
- Alcedo, M. A., Aguado, A. L., Arias, B., González, M. y Rozada, C. (2008). Escala de calidad de vida (ECV) para personas con discapacidad que envejecen: estudio preliminar. Intervención Psicosocial, 17, 153-167.
- Arias, B., Gómez, L. E., Verdugo, M. A. y Navas, P. (2010). Evaluación de la calidad de vida en drogodependientes mediante el modelo de Rasch. Revista Española de Drogodependencias, 35(1), 206-219.
- Aznar, A. S. y Castañón, G. G. (2005). Quality of life from the point of view of Latin American families: a participative research study. Journal of Intellectual Disability Research, 49, 784-788.
- Bonham, G. S., Basehart, S., Schalock, R. L., Marchand, C. G., Kirchner, N. y Rumenap, J. M. (2004). Consumer-based quality of life assessment: the Maryland Ask Me! Project. Mental Retardation, 42, 338-355.
- Bowling, A. y Gabriel, Z. (2004). An integrational model of quality of life in older age. Results from the ESRC/MRC HSRC quality of life survey in Britain. Social Indicators Research, 69, 1-36.
- Bronfenbrenner, U. (1987). La ecología del desarrollo humano. Barcelona: Paidós.
- Brown, R. I. y Brown, I. (2005). The application of quality of life. Journal of Intellectual Disabilities Research, 49, 718-727.
- Brown, R. I., Schalock, R. L. y Brown, I. (2009). Special issue: quality of life and its applications. Journal of Policy and Practice in Intellectual Disability, 6, 1-1.
- Caballo, C., Crespo, M., Jenaro, C., Verdugo, M. A. y Martínez, J. L. (2005). Factor structure of the Schalock and Keith quality of life questionnaire (QOL-Q): validation on Mexican and Spanish samples. Journal of Intellectual Disability Research, 49, 773-776.
- Carlisle, P. R. y Christensen, C. M. (2006). The cycles of theory building in management research. Boston, MA: School of Management-Boston University and Harvard Business School.
- Chou, Y. C. y Schalock, R. L. (2009). Survey outcomes and cross-national comparisons of quality of life with respect to people with intellectual disabilities in Taiwan. Journal of Policy and Practice in Intellectual Disabilities, 6, 7-10.
- Cummins, R. A. (1997). Self-rated quality of life scales for people with an intellectual disability: a review. Journal of Applied Research in Intellectual Disabilities, 10, 199-216.
- Cummins, R. A. (2000). Objective and subjective quality of life: an interactive model. Social Indicators Research, 52, 55-72.
- Cummins, R. A. (2005). Moving from the quality of life concept to a theory. Journal of Intellectual Disability Research, 49, 699-706.
- De Maeyer, J., Vanderplasschen, W. y Broekaert, E. (2009). Exploratory study on drug users' perspectives on quality of life: more than health-related quality of life? Social Indicators Research, 90, 107-126.
- Díaz, S. y Bados, A. (2009). Calidad de vida en personas con trastorno de ansiedad generalizada. Behavioral Psychology/Psicología Conductual, 17, 217-230.
- Diener, E., Emmons, R. A., Larsen, R. J. y Griffin, S. (1985). The satisfaction with life scale. Journal of Personality Assessment, 49, 71-75.
- Epley, D. R. y Menon, M. (2008). A method of assembling cross-sectional indicators into a community quality of life. Social Indicator Research, 88, 281-296.
- Felce, D. y Perry, J. (1995). Quality of life: its definition and measurement. Research in Developmental Disabilities, 16, 51-74.
- Felce, D. y Perry, J. (1996). Assessment of quality of life. En R. L. Schalock (dir.), Quality of life, vol. 1: conceptualization and measurement (pp. 63-73). Washington, DC: American Association on Mental Retardation.
- Felce, D. y Perry, J. (1997). Quality of life: the scope of the term and its breadth of measurement. En R. I. Brown (dir.), Quality of life for persons with disabilities: models, research and practice (2a ed., pp. 56-71). Cheltenham: Stanley Thornes.
- Frazier, P., Tix, A. y Barron, K. (2004). Testing moderator and mediator effects in counseling psychology research. Journal of Counseling Psychology, 51, 115-134.
- Fundación Avedis Donabedian (2000). Manual para equipos de mejora de calidad. Barcelona: autor.
- Garaigordóbil, M., Aliri, J. y Fontaneda, I. (2009). Bienestar psicológico subjetivo: diferencias de sexo, relaciones con dimensiones de personalidad y variables predictoras. Behavioral Psychology/Psicología Conductual, 17, 543-560.
- Gardner, J. F. y Carran, D. (2005). Attainment of personal outcomes by people with developmental disabilities. Mental Retardation, 43, 157-174.
- Gómez, L. E. (2010). Evaluación de la calidad de vida en servicios sociales: validación y calibración de la Escala GENCAT. Tesis doctoral sin publicar, Universidad de Salamanca, España.
- Gómez L. E., Verdugo, M. A., Arias, B. y Arias, V. (en prensa). A comparison of alternative models of individual quality of life. Social Indicators Research.
- Gómez, L. E., Verdugo, M. A., Arias, B. y Navas, P. (2008). Evaluación de la calidad de vida en personas mayores y con discapacidad: la escala Fumat. Intervención Psicosocial, 17, 189-200.
- Gómez-Vela, M. y Verdugo, M. A. (2009). Cuestionario de evaluación de la calidad de vida de alumnos adolescentes: manual de aplicación. Madrid: CEPE.
- Grasso, M. y Canova, C. (2008). An assessment of the quality of life in the european union based on the social indicators approach. Social Indicator Research, 87, 1-25.
- Hodges, S. P. y Hernández, M. (1999). How organizational culture influences outcome information utilization. Evaluation & Program Planning, 22, 183-197.
- Hughes, C. y Hwang, B. (1996). Attempts to conceptualize and measure quality of life. En R. L. Schalock (dir.), Quality of Life. vol. 1: conceptualization and measurement (pp. 51-61). Washington, DC: AAMR.
- Isaacs, B., Clark, C., Correia, S. y Flannery, J. (2009). Utility of logic models to plan quality of life outcome evaluations. Journal of Policy and Practice in Intellectual Disabilities, 6, 52-61.
- Jenaro, C., Verdugo, M. A., Caballo, C., Balboni, G., Lachapelle, Y., Otbrebski, W. y Schalock, R. L. (2005). Cross-cultural study of person-centered quality of life domains and indicators: a replication. Journal of Intellectual Disability Research, 49, 734-739.
- Keith, K. D. y Bonham, G. S. (2005). The use of quality of life data at the organization and systems level. Journal of Intellectual Disability Research, 49, 799-805.
- Keith, K. D. y Schalock, R. L. (2000). Cross-cultural perspectives on quality of life. Washington, DC: American Association on Mental Retardation.
- Keith, K. D., Heal, L.W. y Schalock, R. L. (1996). Cross-cultural measurement of critical quality of life concepts. Journal of Intellectual and Developmental Disability, 21, 273-293.
- Kober R. y Eggleton I. R. C. (2002). Factor stability of the Schalock and Keith (1993) Quality of Life Questionnaire. Mental Retardation, 40, 157-65.
- Martín, J. C. (2006). Modelo de calidad de vida de Schalock y Verdugo (2002-2003): validación mediante análisis multivariable. Tesis doctoral sin publicar, Universidad de Salamanca, España.
- Martín, A., Pérez, M. A., Díaz, R. y Pérez, J. (2008). Comparación de la calidad de vida relacionada con la salud entre los trasplantados renales, cardíacos y hepáticos durante el proceso de trasplante. Behavioral Psychology/Psicología Conductual, 16, 103-118.
- Meijer, C., Koeter, M. W. J., Sprangers, M. A. G. y Schene, A. H. (2009). Predictors of general quality of life and the mediating role of health related quality of life in patients with schizophrenia. Social psychiatry and psychiatric epidemiology, 44, 361-8.
- National Core Indicators (2005). The core report: data brief: factors influencing access to health care. Cambridge, Massachusetts: Human Services Research Institute.
- Petry, K., Maes, B. y Vlaskamp, C. (2005). Domains of quality of life of people with profound multiple disabilities: the perspective of parents and direct support staff. Journal of Applied Research in Intellectual Disabilities, 18, 35-46.
- Petry, K., Maes, B. y Vlaskamp, C. (2007). Support characteristics associated with the quality of life of people with profound intellectual and multiple disabilities: the perspective of parents and direct support staff. Journal of Policy and Practice in Intellectual Disabilities, 4, 104-110.
- Perry, J. y Felce, D. (2005). Factors associated with outcomes in community group homes. American Journal on Mental Retardation, 110, 121-135.
- Ryff, C. D. y Keyes, C. L. M. (1995). The structure of psychological well-being revisited. Journal of Personal and Social Psychology, 69, 719-727.
- Rosas, S. R. y Camphausen, L. C. (2007). The use of concept mapping for scale development and validation in evaluation. Evaluation & Program Planning, 30, 125-135.
- Ruggeri, M., Nose, M., Bonetto, C., Cristofalo, D., Lasalvia, A., Salvi, G., Stefani, B., Malchiodi, F. y Tansellaet, M. (2005). Changes and predictors of change in objective and subjective quality of life. British Journal of Psychiatry, 187, 121-130.
- Ryan, R. M. y Deci, E. L. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. American Psychologist, 55, 68-78.
- Ryu, E., West, S. G. y Sousa, H. (2009). Mediation and moderation: testing relationships between symptom status, functional health, and quality of life in HIV patients. Multivariate Behavioral Research, 44, 213-232.
- Sabeh, E., Verdugo, M. A., Prieto, G. y Contini, N. (2009). CVI-CVIP: cuestionario de evaluación de la calidad de vida en la infancia. Madrid: CEPE.
- Schalock, R. L. (2000). Three decades of quality of life. Focus on Autism and others Developmental Disabilities, 15, 116-127.
- Schalock, R. L. (2001). Conducta adaptativa, competencia personal y calidad de vida. En M. A. Verdugo y F. B. Jordán de Urríes (dirs.), Apoyos, autodeterminación y calidad de vida (pp. 83-104). Salamanca: Amarú.
- Schalock, R. L. (2004). The concept of quality of life: what we know and do not know. Journal of Intellectual Disability Research, 48, 203-216.
- Schalock, R. L. y Bonham, G. S. (2003). Measuring outcomes and managing for results. Evaluation & Program Planning, 26, 229-235.
- Schalock, R. L., Bonham, G. y Marchand, C. (2000). Consumer based quality of life assessment: a path model of perceived satisfaction. Evaluation & Program Planning, 23, 77-87.
- Schalock, R. L., Bonham, G. S. y Verdugo, M. A. (2008). The concept of quality of life as a framework for program planning, implementation, evaluation, and improvement. Evaluation and Program Planning, 3, 181-190.
- Schalock, R. L., Brown, I., Brown, R., Cummins, R. A., Felce, D., Matikka, L., Keith, K. D. y Parmenter, T. (2002). Conceptualization, measurement, and application of quality of life for persons with intellectual disabilities: results of an international panel of experts. Mental Retardation, 40, 457-470.
- Schalock, R. L. y Felce, D. (2004). Quality of life and subjective well-being: conceptual and measurement issues. En E. Emerson, C. Hatton, T. Thompson y T. R. Parmenter (dirs.), International handbook of applied research in intellectual disabilities (pp. 261-279). Londres: John Wiley & Sons.
- Schalock, R. L., Gardner, J. F. y Bradley, V. J. (2009). Quality of life for people with intellectual and other developmental disabilities. Applications across individuals, organizations, communities, and systems. Washington, DC: American Association on Intellectual and Developmental Disabilities (Orig. 2007).
- Schalock, R. L., Keith, K. D., Verdugo, M. A. y Gomez, L. E. (2010). Quality of life model development in the field of intellectual disability. En R. Kober (dir.), Quality of life for people with intellectual disability (pp. 17-32). Nueva York: Springer.
- Schalock, R. L. y Verdugo, M. A. (2003). Quality of life for human service practitioners. Washington, DC: American Association on Mental Retardation. (Orig. 2002).
- Schalock, R. L. y Verdugo, M. A. (2007). El concepto de calidad de vida en los servicios y apoyos para personas con discapacidad intelectual. Siglo Cero, 38, 21-36.
- Schalock, R. L., Verdugo, M. A., Bonham, G. S., Fantova, F. y Van Loon, J. (2008). Enhancing personal outcomes: organizational strategies, guidelines, and examples. Journal of Policy and Practice in Intellectual Disabilities, 5, 18-28.
- Schalock, R. L., Verdugo, M. A., Jenaro, C., Wang, M., Wehmeyer, M., Xu, J. y Lachapelle, Y. (2005). A cross-cultural study of quality of life indicators. American Journal on Mental Retardation, 110, 298-311.
- Shoemaker, P. J., Tankard, J. W. Jr. y Lasorsa, D. L. (2004). How to build social science theories. Thousand Oaks, CA: Sage.
- Shogren, K. A., Bradley, V. J., Gomez, S. C., Yeager, M. H., Schalock, R. L., Borthwick-Duffy, S., Buntinx, W. H. E., Coulter, D. L., Craig, E. M., Lachapelle, Y., Luckasson, R., Reeve, A., Snell, M. E., Spreat, S., Tassé, M. J., Thompson, J. R., Verdugo, M. A., & Wehmeyer, M. L. (2009). Public policy and the enhancement of desired outcomes for persons with intellectual disability. Intellectual and Developmental Disabilities, 47, 307-319.
- Skevington, S. (2002). Advancing cross-cultural research on quality of life: observations drawn from the WHOQOL development. Quality of Life research, 11, 135-144.
- Summers, J. A., Poston, D. J., Turnbull, A. P., Marquis, J., Hoffman, L., Mannan, H. y Wang, H. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49, 777-783.
- Tamarit, J. (2005). Hacia un sistema de evaluación de la calidad en FEAPS. Intervención psicosocial, 14, 295-308.
- Tang, T. L. P. (2007). Income and quality of life: does the love of money make a difference? Journal of Business Ethics, 72, 375-393.
- Van Loon, J. (2009). Uso de la escala de intensidad de apoyos en la práctica. Asignación de recursos y planificación de apoyos individuales basados en la Escala de Intensidad de Apoyos. Siglo Cero, 40, 54-66.
- Van Loon, J., van Hove, G., Schalock, R. L. y Claes, C. (2008). Personal outcomes scale. Middleburg, Holanda: Arduin Steichlich.
- Verdugo, M. A. (dir.) (2006). Cómo mejorar la calidad de vida de las personas con discapacidad. Salamanca: Amarú.
- Verdugo, M. A. (2009). Calidad de vida, I+D+i y políticas sociales. Siglo Cero, 40, 5-21.
- Verdugo, M. A., Arias, B., Gómez L. E. y Schalock, R. L. (2008a). Formulari de l'escala Gencat de qualitat de vida. Manual d'aplicació de l'escala Gencat de qualitat de vida. Barcelona: Departamento de Acción Social y Ciudadanía, Generalitat de Cataluña.
- Verdugo, M. A., Arias, B., Gómez L. E. y Schalock, R. L. (2008b). Escala Gencat. Informe sobre la creació d'una escala multidimensional per avaluar la qualitat de vida de les persones usuàries dels serveis socials a Catalunya. Barcelona: Departamento de Acción Social y Ciudadanía, Generalitat de Cataluña.
- Verdugo, M. A., Arias, B., Gómez L. E. y Schalock, R. L. (2009). Formulario de la Escala GENCAT de Calidad de vida. Manual de aplicación de la Escala GENCAT de Calidad de vida. Barcelona: Departamento de Acción Social y Ciudadanía, Generalitat de Cataluña.
- Verdugo, M. A., Gómez, L. E., Arias, B. y Schalock, R. L. (2009). Escala Integral de Calidad de Vida. Madrid: CEPE.
- Verdugo, M. A., Gómez, L. E., Schalock, R. L. y Arias, B. (2010). The Integral quality of life scale: development, validation, and use. En R. Kober (dir.), Quality of life for people with intellectual disability pp. 47-60). Nueva York: Springer.
- Verdugo, M. A., Prieto, G., Caballo, C. y Peláez, A. (2005). Factorial structure of the quality of life questionnaire in a Spanish sample of visually disabled adults. European Journal of Psychological Assessment, 21, 44-55.
- Verdugo, M. A., Schalock, R. L., Gómez, L. E. y Arias, B. (2007). Construcción de escalas de calidad de vida multidimensionales centradas en el contexto: la Escala Gencat. Siglo Cero, 38, 57-72.
- Verdugo, M. A., Schalock, R. L., Keith, K. y Stancliffe, R. (2005). Quality of life and its measurement: important principles and guidelines. Journal of Intellectual Disability Research, 49, 707-717.
- Verdugo, M. A., Gómez, L. E. y Arias, B. (2007). La escala Integral de calidad de vida: desarrollo y estudio preliminar de sus propiedades psicométricas. Siglo Cero 38, 37-56.
- Wang, M., Schalock, R. L., Verdugo, M. A. y Jenaro, C. (2010). Examining the factor structure and hierarchical nature of the quality of life construct. American Journal on Intellectual and Developmental Disabilities, 155(3), 218-233.
- WHOQOL Group (1998). The World Health Organization WHOQOL-BREF quality of life assessment, Psychological Medicine, 28, 551-558.
- Xu, J., Wang, M., Xiang, Y. y Hu, X. (2005). Quality of life for people with intellectual disabilities in China: a cross-culture perspectives study. Journal of Intellectual Disabilities Research, 49, 745-749.