Adapting a measure of quality of life to children with Down Syndrome for the development of evidence-based interventions

  1. Laura E. Gómez 1
  2. Miguel A. Verdugo
  3. Mar Rodríguez
  4. Lucía Morán 1
  5. Víctor B. Arias 1
  6. Asunción Monsalve 1
  1. 1 Universidad de Oviedo
    info

    Universidad de Oviedo

    Oviedo, España

    ROR https://ror.org/006gksa02

Revista:
Psychosocial Intervention

ISSN: 1132-0559

Año de publicación: 2020

Volumen: 29

Número: 1

Páginas: 39-48

Tipo: Artículo

DOI: 10.5093/PI2019A17 DIALNET GOOGLE SCHOLAR lock_openAcceso abierto editor

Otras publicaciones en: Psychosocial Intervention

Resumen

La investigación ha puesto de manifiesto que actualmente no existen instrumentos que presenten una adecuada evidencia de validez y fiabilidad para evaluar la calidad de vida (CV) de los niños con síndrome de Down (SD). De hecho, se encuentran importantes limitaciones cuando se aplican a esta población instrumentos de CV diseñados para personas con discapacidad intelectual. El principal objetivo de este trabajo es adaptar la escala KidsLife seleccionando los ítems más fiables y con mayor poder discriminativo para los jóvenes con SD. La muestra estaba formada por 405 jóvenes con SD, con edades comprendidas entre los 4 y los 21 años que asistían a organizaciones proveedoras de servicios educativos, sociales y de salud. La versión piloto de la escala KidsLife la contestó un informante que conocía al joven o a la joven bien, teniendo la oportunidad de observarle durante periodos prolongados de tiempo en diferentes situaciones. Se proporcionan pruebas de la fiabilidad y validez basadas en la estructura interna de la escala. De acuerdo con el modelo de CV utilizado para el desarrollo de la escala, la solución que mostró mejor ajuste a los datos fue la de ocho dimensiones correlacionadas. Finalmente, se discuten las implicaciones del estudio, sus limitaciones y se hacen sugerencias para la investigación futura.

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Información de financiación

This study has been funded by the Ministry of Economic and Competitiveness of Spain (PSI2012-33139).

Financiadores

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Fuente de los datos: Dialnet